Thursday, March 26, 2009

"My flesh and my heart may fail, but God is the strength of my heart and my portion forever" --Psalm 73:26

It is another beautiful day, and since there's a ton of stuff on my to-do list and only a couple things to update, this is going to be another one of the very rare short posts. BUT, I do want to let everyone know about my scans and such. So, here goes...

I have my Pulmonary Function Test tomorrow (Friday) morning at 8am at Northwestern, my MUGA following that at 9:15am, and my CT scan tomorrow at 12pm. Apparently I don't actually need to do another PET scan since the last one was clear, so for now, those three tests are the ones on the calendar. The scheduler said that Dr. Gordon should have the results by Tuesday, but since I have another treatment next week, I'm guessing we'll find out the results when we go in.

As for treatment number 9 next week, I've switched it back to Thursday, so April 2nd is the big day for treatment, results, and visiting with the doctor. I feel all over the place, having changed my treatment schedule like 50 times, but while Wednesday works better to feel well for class on Tuesdays, it's not conducive to my parents coming up to the doctor visits and it also makes me feel bad over the weekends, which means I miss other commitments that I have. So, I'll just have to tough out every other Tuesday until the end of the semester.

Last thing for now--I don't think I've shared many specific ways to be praying lately other than for perseverance, but I would LOVE prayers for focus and to finish strong. "Finish Strong" is an adopted motto of mine (thank you K-West and AO), and as the semester, school year, and my college career all come to a close, I would love prayer for that. Additionally, my nurse Michelle told me that they joke about "chemo brain" which makes it hard for people to focus while undergoing chemo, but I pretty much shrugged that off. In my mind, I already take a stimulant to help me focus when it's hard to concentrate, so I figured at least I had some experience there. However, my nurse was right--which is good because we'd like my nurses and doctors to know what they're talking about. As the semester's winding down, I'm applying for jobs, and I need to be staying on task, which has been so much harder than I imagined. Sounds lame, and I feel lame for saying it, but it's true. So, I would love continued prayers for perseverance, focus, and to finish strong.

As always, I appreciate everything. SO MUCH. I will not get tired of saying that. I was talking to my roommate Rachel yesterday, and I explained that, while I've definitely learned a lot and grown so much in my faith in all of this, more than feeling like I've had these sublimely incredible experiences with the Lord, I feel like the emphasis has been more toward learning to lean on and grow with other believers--the body of Christ. As I've said, I'm fairly independent--it's just easier for me to do my own thing and I'm pretty good at doing just that--but this has been so great, not only "restoring my faith in others" as I've talked about before, but also with really realizing the necessity of being a PART of the body of believers. While we're not supposed to go to our friends for everything--God still wants our all--at the same time, we are made for relationships, and fellowship is HUGE. So, REALLY, thank you. :) Have a great day!

On Christ the solid Rock I stand,

Hannah

Tuesday, March 17, 2009

"...we went through fire and water, but You brought us to a place of abundance." -Psalm 66:12

Happy St. Patrick's Day! Today is officially an amazing day, in my opinion, because it is 75 degrees outside (yes, in Wheaton, IL in MARCH!) and sunny, too! Plus, I am still riding high from having an amazing time over the past week, so I am soaking it all in right now.

First, to comment on Psalm 66:12--I read this last night, and it just seemed so poignant--what with having read "The Red Sea Rules," and being reminded of how the same God who faithfully brought the Israelites through the Red Sea brings us through our trials and the hard times just as faithfully. Also, there's a great Ginny Owens song that I first heard in middle school probably, and I have so loved it since then. It's called "If You Want Me To," and my favorite part of it says,

"Cause I'm not who I was when I took my first steps, and I'm clinging to
the promise that You're not through with me yet. So if all of these
trials bring me closer to You, then I will go through the fire if You
want me to. It may not be the way I would've chosen, when You lead me
through a world that's not my home. But You never said it would be easy,
You only said I'll never go alone."

Anyway, when I read Psalm 66 last night and I made it to verse 12, I was reminded of the Red Sea Rules and of this song, both of which have great points in encouraging us to press on and trust in the One that is faithful and who can and WILL bring us through any and every trial, bringing us to a place of abundance with Him.

So, that was a huge encouragement to me, especially because, I'll be really honest with you: I'm tired of this whole "chemo thing." It's pretty lame, in my opinion. Currently, I can't really straighten my left arm due to the effects of the drugs on my vein which make my arm really painful and my veins ropey (if that's actually a word). Also, I have one vein so tight that I'm slightly convinced that if I do straighten my left arm, my vein might just snap in half or something. My perseverance is being tested, so for those of you who are praying specifically for that, THANKYOU THANKYOU THANKYOU!!! That said, I have been shown lately--through encouragement, reminders of God's faithfulness, and hearing some REALLY tough stories lately about other people battling intense cancers and other hardships--that I am so blessed in all of this, no matter how my sarcastic and slightly pessimistic self might otherwise try to be convinced at times.

Speaking of blessing...last week was GREAT! I said I would write on here before I left, but clearly that didn't happen--getting out of town is always a whirlwind for me, and this time was no exception. We had some minor flooding issues Sunday night, and the Armstrongs (my stand-in family up here in Wheaton who have all been the biggest blessing to my time here and can't adequately be bragged about) came over for many-an-hour during the chaos to fix the sump pump and backup that both quit on us. PTL that I was still in town--it was spring break, so any other year, I would've peaced out ASAP to get me some sun, but since I'd had treatment, day 5 and 6 fell on Sunday and Monday, so I didn't leave for my trip until Tuesday morning. So, as much as I was moping on the couch about having to be here when it was eerily empty around Wheaton with everyone else gone, PTL that I was here to see the water instead of only finding it once it had flooded everything, and PTL that the Armstrongs are great under pressure and handle pretty much every situation with grace and peace. So anyway, amidst the chaos of water being in places it shouldn't have been, I was trying to muster up energy and focus enough to pack and get out of town, so I carried on the legacy of being a whirlwind when getting out of town like a pro.

Once I got to New York City, though, I had an awesome time! I got to spend some great quality time with Melissa (my first co-counselor from K-West-the-BEST), and we had a blast seeing the city. We saw two plays, and afterward we met some of the cast outside of both shows, which was fun because Lauren Graham (Lorelei from Gilmore Girls) and Oliver Platt were in Guys and Dolls, so we met them and got their autographs. We also toured NBC studios and saw behind-the-scenes of the Today Show and Nightly News with Brian Williams. We couldn't see SNL's studio which was a bummer, and the second bummer was that the REASON we couldn't see SNL was because Kelly Clarkson was up there practicing for the show on Saturday, and as I want to be her, I was disappointed at being so close but so far, but life goes on. We did a ton of other stuff, so it was just fun being there and actually being able to walk around a lot and have the energy to do NYC.

Saturday afternoon I flew to Houston from New York for my cousin Elaine's wedding. IT WAS SUCH A BLAST! I am still just like so full of joy from having been there with my family and from the fun that we had! Elaine is the oldest of all the McGinnis cousins, and after her, we've had at least one graduation--and sometimes two--pretty much every year, so we're all packed in there age-wise. This was kind of kicking off what will be a fun succession of many McGinnis cousin weddings, and the wedding was BEAUTIFUL. My Aunt Janis (Elaine's mom) did an incredible job planning and my Aunt Karen did an awesome job coordinating everything, so the bar has been set really high. My dad was sitting back and observing for a good portion of the wedding, and I'm guessing right now he's happy that he's got a while until he has to start paying for three weddings. Anyway, I had so much fun and was just reminded the whole time with how incredible my family is and how extremely blessed I am to have them for family, to have grown up with them, and to still be close with my cousins. So, it was even just a blessing to have that reminder at a time when I was really annoyed with feeling like we've come so far but still have so far to go with this dumb cancer.

And with that, on to the update about treatment. So, tomorrow I have chemo #8. Holla-lujah! (shoutout to Ashley Gross for that term) The bummer news we found out from the last treatment was that, we will pretty much be doing all 12 treatments. They had said there was a possibility we would only do 8, so we were being hopeful--while trying to be realistic--that there was a small chance this could end sooner than planned. But, this past treatment, Dr. Gordon was explaining the criteria by which they would make that decision, and it sounds like if my MUGA scan (for my heart) and the Pulmonary Function test (lungs) after this treatment come back showing that the chemo has done any damage to my heart or lungs, THEN we will stop treatment. So, basically, although I would LOVE to only have to do 8 treatments, I'm thinking permanent damage to my heart and lungs sounds like a bad idea, so now we're kind of hoping that the report comes back saying my heart and lungs are fine and we're going all the way to 12. While we knew the chances were slim to stop at 8 anyway, the possibility was encouraging to me, so after this last news which pretty much shot down hope for me, my angst toward "dumb chemo" set in, thus the need for perseverance. On the upside, we ARE at chemo 8, and four months ago, that seemed like a REALLY long time away. As much as chemo is a drag, time is flying. Today I started the final quad of my Wheaton career, so I'm down to 8 weeks of college. Gosh that's scary. I am nowhere near competent at life to be a real adult, yet. Maybe after the next 5 chemo treatments, I will feel differently...?

So, that's the report from me now. OH---except, I would like to close with an excerpt from a book that my mom's sisters sent her for our "chemo-day care packages" that they so faithfully send (shoutout to Aunt Karen, Aunt Debi, and Aunt Jill!) to all of us for each treatment. My mom passed on "Same Kind of Different as Me," by Ron Hall and Denver Moore, and while I am usually against reading popular Christian books (call me a literature snob or just stubborn), I am putting my literary stamp of endorsement on this book. Keep some tissues with you, though. I had to stop reading it on the airplane to New York because I think the man next to me was getting concerned about me. Anyway, it's a great story of two men from completely different worlds and how they end up forming a relationship and what happens along the way. Read it. So, here's something Ron Hall writes about at the end of the book as he's reflecting upon this unexpected journey he's been on and talks about the pain and tears he still has (and I'm trying not to give too much away...):

"And I cannot mask my disappointment that God did not answer yes to our
prayers for healing. I think He's okay with that. One of the phrases we
evangelicals like to throw around is that Christianity is 'not just a
religion; it's a relationship.'I believe that, which is why I know that
when my faith was shattered and I raged against Him, He still accepted me.
And even though I have penciled a black mark in His column, I can be
honest about it. That's what a relationship is all about."

You may or may not agree with that, but when I got to that at the end of the book, it just resonated so greatly with me. I remember telling Melissa during the fall, right after I had hurt my knee in volleyball, that I "just needed a victory right now." Well, two weeks later, our season ended with us NOT going to playoffs for the first time in my Wheaton career, and then next week the frenzy of going to doctors started. And yet, God TOTALLY supplied me with the perseverance I needed at that point because, when I made that statement to Melissa, if you had told me that I was fixing to find out I had cancer, I would've had a bigger meltdown than the one I was having at that point, so again, He is so faithful! My situation is nowhere NEAR as hard to handle as Ron's and so many others--I was thinking of my friend since kindergarten Liz Allbright and her amazing family in dealing with her mom's passing as I read the book--there are so many that I mentioned I've been hearing about lately, and I am reminded again of how light this trial is in contrast to what they're going through. But, I do nevertheless resonate with feeling so disappointed that God has not answered "yes" to many prayers over the past six months, and what's more, I have definitely been learning what Ron says next: that he thinks God's okay with us being disappointed that He hasn't answered certain prayers in ways we'd like. As bad as that sounds, it IS, in fact, about a relationship, and since He knows how I'm actually feeling deep down inside, I'm seeing that there's absolutely no point in acting like I'm happy with dumb cancer or like I'm actually excited that He said "no" to a prayer. That's not real, and from my experience, that's groundwork for a pretty lame relationship. Furthermore, I liked that Ron talked about "penciling a black mark in that column," because I feel like that at times, and I'm glad I'm not the only one! I KNOW through and through that God is faithful, and I am absolutely sure that His plans for me are so much better than I could imagine (see previous post...), but that doesn't mean that I am always happy about it or that I forget and gloss over my disappointment. I wish I could forget the great disappointment I felt years ago when I was rejected from UNC, but, even in that now-insignificant time, I think I probably penciled a black mark in the column of disappointment and prayers answered other than how I wanted. And, what's most important about all of this rambling of mine is that, since it IS a relationship, like Ron says, "I can be honest about it," and He is not going to "catch-and-release" me when I am honest.

Whew. All of that is to say two things: (1) I am so thankful that we have a dynamic relationship with God and that He's okay with me being me--cynical at times, sarcastic most of the time, and a glorious MESS all the time and (2) you really should read "Same Kind of Different as Me." :)

Congratulations on making it through yet another loooong post. I've been storing up these thoughts, and now that they're out, I feel like I need a nap or something. Thank you for your prayers and for the million ways you have blessed me with your words, scrapbook pages, cards, e-mails, and everything else under the sun. I hope you have a blessed day (holla for the Irish!), and that you know that God is faithful to carry us through each trial, frustration, and even each day.

On Christ the solid Rock I stand,
Hannah

Monday, March 2, 2009

"Your love, O LORD, reaches to the heavens, Your faithfulness to the skies. Your righteousness is like the mighty mountains..." Psalm 36:5-6a

What a great Psalm! I'm sure many of you know this from the song aptly titled "Your Love O Lord," which, in its own right, is a great song. I have a very vivid memory of standing on a beach in the Dominican Republic the summer after my senior year of high school, singing this song. It was the end of an incredible--and honestly life-changing--mission trip with my youth group from Bent Tree, and our team of 11 students and 2 leaders was de-briefing at a hotel in Santo Domingo. Part of that included team worship time on our last night, and that's where we come to me, standing on the beach, facing the ocean, mountains in the distance, a full moon, and not a cloud in the sky, singing this song, and just absolutely KNOWING the words to it and understanding it in such a real way. For many reasons this trip was so significant, and to close it out, it was probably the second greatest night of my life-- being able to look out to my surroundings and get such an incredible visual of these words: "Your love...reaches to the heavens, your faithfulness stretches to the skies. Your righteousness is like the mighty mountains, your justice flows like the ocean's tide." The song goes on to say, "I will lift my voice to worship You, my King. And I will find my strength in the shadow of Your wings."

Having always loved these words and having a great memory/visual to which I can place them, they are such a good reminder in a time like this. On our trip, basically our whole construction plans of pouring a foundation were thwarted by an approaching hurricane that drenched the site and filled the trenches for our foundation with water. So, instead of accomplishing a good amount of manual labor, we ended up trying to get water (and frog eggs...sicknasty) out of the trenches each day, fixing rebar (sp?) and wondering why we were pretty much the most underachieving team Bent Tree had yet sent to the DR. However, since our elaborate construction plans all changed, the missionaries came up with a "plan b" which was to help clean one of the houses on site that the team the year before (that I was a part of) had mostly built, readying it for the first orphans to inhabit. Long-story-short, we got to move in the first people to the whole mission site, which was the fulfillment of the missionary's dream and the culmination of 25 years of work on his part to accomplish that dream.

And so, that whole experience typified what I've learned many times since--that often (and especially in my life), things go so far from the way we have planned them--and that can often seem like we've failed. But, God's plans are so much better than we could ever have imagined; the night we moved those orphans in was probably the greatest night of my life, and we wouldn't have been able to do that had the rain not thwarted our plans to make us the most "underachieving" team Bent Tree had ever sent to the DR. That lesson rings so true today--hey, I never would have picked lymphoma to cap off my senior year of college, and while it, like bailing out frog-infested waters in trenches in the DR, is not always a fun or easy learning process, God's plans are so much better than ours, and if we can just TRUST Him, His promises are true, and the end is better than we can imagine. The night after we moved in the orphans was the one on the beach, and that night, everything was so clear and put into great perspective--that His love truly never ends; that His faithfulness is beyond the heights up in that clear expanse of never-ending blue; that His righteousness is high and bold like those mountains in the distance; that His justice is as deep as that ocean and just keeps on coming like the ocean's tide. And now, I need that reminder--that, out of every situation in our lives, our response should be to lift our hands and our voices to worship Him, our King, as well as to truly find our strength in the shadow and comfort of God alone. I'll be honest--some days I'm better at that than others--yes, even while going through cancer. You'd think that, since sometimes it's just more natural (maybe not easier) to lean on the Lord alone during a trial, I'd be a pro at that right now. And then, you would be wrong.

Nevertheless, His faithfulness (which is never-ending in case you didn't get that the previous two times I mentioned it) continues, and praise the Lord that He loves us in spite of vacillating all the time between trusting Him and trusting ourselves. I like to consider myself a pretty consistent person--that was my best attribute out on that volleyball court--and yet, somehow the things I've learned in volleyball, while quite frequently carrying over into real life, have not ALL translated to my daily life here in the real world outside of the volleyball court. So sadly, even though this process of chemo, etc. is not fun and is not on my list of things I'd like to ever do again--and that would seem like it would make me perfectly consistent in trusting Him each day--that, lamentably, is not the case. But, depending on how you look at it, that could be a fortunate thing since it does have the effect of bringing me back to my knees in humility when I realize that, once again, I've been trying to do it on my own, and when faced with my own need and inability to actually DO it on my own, I am back to trusting in Him.

I just had some thoughts, had to reminisce about that night in the DR, and wanted to check in with the audience at home for a few minutes, but--SHOCK!--it seems I have already written a good amount! Now on to the more concrete details for those of you beaver-types who like the details more than the whimsical ramblings and spontaneity of us otters (if that reference escapes you, you probably should read the Treasure Tree book about personalities--it's a good read--illustrated and all :) ).

So anyway, it is Monday night, and this is our last week before Spring Break and my last quad (1/2 semester here at Wheaton) of college. OH MY GOSH. SCARRRRYYYY. You know, you push through college, at times thinking it will never end, only to throw on the brakes and live in denial of the fact that real life is coming more quickly than you actually really wanted that whole time. You all know the experience--wanting to get to the end and then, when it's within sight, feeling like a moron for having wanted so much to get there and for having wasted a lot of time along the way. That's me. right now. senior. scared. needing a job and not having a clue where I will be in 6 months (except, of course, doing my best to make sure that whatever I'm doing is located anywhere warm). I digress, however. I was mentioning how it is my spring break next week...well, it is TCA's spring break this week, so my mom and Madelyn are flying up tomorrow morning through Thursday morning to hang out in Chi-town with me and accompany me to treatment number 7. Please pray for their safety as they're traveling and that our time would be so sweet together. I love those guys! Also, pray that my dad would enjoy his time home alone--he said tonight that he gets only about three days absolutely to himself each year, so he's kinda looking forward to the next few days of not being around the women in his life. (this in no way offends me; poor guy has to deal with 4 ADD women all the time, so do not begrudge him for looking forward to some personal days). And, for the fourth McGinnis woman (Katie), here's a huge praise--she has a job in Child Life now at the hospital in Colorado Springs, so she is relieved to know what she is doing for a while and to have a place to live--things have been a little stressful for Katie in the Springs lately, so thanks for praying for her safety traveling out there and as she's been trying to figure out life.

After my mom and Madelyn leave, I'll be recovering from treatment 7 as we head into our spring break, so I'll be sure to update sometime before I leave for New York City next Tuesday (I'm going with my first co-counselor from Kanakuk K-West and subsequent bff Melissa Fain!). I'm so blessed to be going somewhere, and it's amazing that it worked out to be going somewhere with Melissa, too! At first we thought I'd have to just park it at home in Fairview for a week while my mom and Mad had school and my dad had work and all my friends are gone on their spring breaks, so really, I've been SO looking forward to this trip as something to brighten up the otherwise monotonous 2-week cycle of chemo treatments. After NYC, I'm heading to Houston for my cousin Elaine's wedding (!!!!), which will be great family time and so much fun to see all my cousins and family again--as I've said, we're a tight bunch. But, all of those details are most likely superfluous...it's getting late and I'm trailing off worse than normally...back to treatment 7. It's on Wednesday (so two days--March 4th) at 3pm. Being halfway done is amazing--what a praise and blessing--but at the same time, it's still a little daunting to know that what I've so far done, I now turn around and do all over again. So, I would love prayer for perseverance--I've known from day 1 that the support has been incredible and such, but I've also been very conscious from day 1 that, come the middle of this journey, it would be so much harder, and I guess I know myself to a good degree because that is the case. It's not unbearably hard, but it is harder right now for me than it was at the start, so perseverance to take one day at a time still, to stay in the Word daily, and to keep my eyes fixed on the goal of this, which is total healing, are all things I would love prayer for. Also, physically, as I'm heading into the much-longed-for trip to NYC, continuing prayers for health and recovery from this treatment (since I'll be flying on day 7, the first day of starting the upward slope of my tolerance for the chemo) would be great--also that I will be safe from germs. :) Last sidenote--and a huge praise!--last week I was supposed to hang out with three different people, all on different days, and at some point, each one called or texted to say they were sick and were gonna have to cancel. While I was a little bummed each time someone flaked, it was actually so cool to see in hindsight because I found out with each of the three of them after the fact that they had fevers and didn't know it when they canceled our hanging out. PTL! If someone has a cold, it's not really been a concern for me because I've had colds during this process and that's fine; it's the fever thing that gets me--if I get 100.5 or more, I have to go to the hospital, and since that's a pretty small margin of a temperature, what a praise that each person canceled on me! I'm finding many reasons to praise Him for things that, otherwise I might scoff at as small, and yet now that I can see are ways the Lord is looking out for me.

Ok, that's all for now. I'll check back in after chemo 7! Oh--last thing--and this will definitely incriminate me as a Texan, of which I am THRILLED to be accused--but Happy Texas Independence Day! Yes, this is a state holiday. Or a "national holiday" if you want to go REALLY Texan and talk about our state as a nation, since it WAS and all. :) I gotta get me back to the south...

Once again, thankyou thankyou thankyou for your love, prayers, and support. God bless, may you be warm, and may you KNOW that His love never ends, His faithfulness is so vast, His justice is so present and deep, and His righteousness is strong and great.

On Christ the solid Rock I stand,

Hannah